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Should I take my alzheimer parent to private care? 
Started by KiraBoyd
24 Aug 2020, 9:19 AM

What is the solution? Unfortunately, there are times when I cannot cope with the disease on my own. It's frustrating, but I'm considering to find help. I'm living in Missisauga and except Gentle Touch Assisted living, can someone point me to long term care facilities? 

In addition, can someone share their experience with them? Thank you.
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24 Aug 2020, 9:36 PM

Welcome Kiraboyd - glad you found this community. I think that may be one of the hardest things to come to terms with - we can't do all we would really like to or feel we should. I am glad you have support from the assisted living forum.  

I was just looking at another thread Giving up......? and thought you might find Razz, Adoptedson and KCBJ's experiences helpful.

I know others on the forum will also offer their support and experiences. 

Do you have siblings or others who are able to weigh in as you make decisions?

Katherine


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Reply by NatR
24 Aug 2020, 10:54 PM

Hello KiraBoyd,

welcome to the forum - a bit quiet of late but still a place to bring concerns and questions, glad Katherine offered you some ideas -

I lost my mom to dementia also but distance meant I wasn't able to be involved in her day to day care.  She was a retired nurse (RNA) and I am a retired personal support worker - at the time I was still supporting myself doing caregiving in a nursing home - so I understand completely how draining and exhausting care can be - especially if it's just one caregiver.

if you can rely on incoming Homecare to give you a break - great.  If not, as Katherine said you need a team to take on a 24/7 job.

guilt is the most difficult part of caregiving for loved ones.  If you can find help to ease your load and still be involved - great!  If you must consider placing your mom - and with waiting lists that's an if ( isn't it?),  if you must, don't beat yourself up - visit when you can, do what you are able, and I hope you can find a perfect situation to work for you and your mom.  

its a reality that caregiving for our loved ones is a challenge but somehow we manage to find something that works.   

im glad you wrote the forum, and I hope others will respond -  the Alzheimer's Society has a visiting program that gives you a chance to get out, give yourself some TLC.  Remember that your batteries need charging - or you will have nothing for you or your mom

sorry that this post might not be helpful but I tend to speak honestly and have walked in your shoes.  Taking care of the caregiver ranks up there with your mom's needs

I hope you will find something in my words that helps.  So many others on the board also have much wisdom and insight - we are all just like you - we love, we care, we do our best 
hold that thought and I hope you reply when you have found the help that works best for you and your mom
my best to you
peace,
NatR ❤️ 
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Reply by eKIM
24 Aug 2020, 11:08 PM

Welcome KIRABOYD


I hope that you find the answers and the support that you are seeking here at virtualhospice.ca.


I have no direct family experience with Alzheimer’s.  I have experience as a hospice volunteer and have comforted people with all types of cognitive issues.  I have seen how difficult it is for families.  How are you holding up, emotionally?


As well as answers to your specific questions, if you wish to tell your story to compassionate listeners, you have come to the right place.


What comprises your support system at this time, KIRABOYD?


Thinking about you.


- eKim

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Reply by JennJilks
25 Aug 2020, 12:39 AM

I think you will find that the Altzheimer Society has lots of important information. Do call them. They are really supportive and can give you practical ideas, based on experiences.

My late father had dementia due to a brain tumour, and I know how difficult it is when they live in their own reality.

We couldn't manage him. Physically or emotionally. We did place him in a long-term care. It's not worth your health, as well as your mental health. 
You do what is best for you. Take care,
Jennifer
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Reply by KiraBoyd
25 Aug 2020, 10:09 AM

Katherine : Yes I have siblings, cousins, friends, but it's kinda hard to bear them with my problems. They're supportive off course...but if you don't take care of your mother, who will? Thank you for your response.

NATR: I'm sorry about that. I hear ya, home care is a good choice... but isn't 24/7 care (long term care) smarter for both of us? Thank you for your reply.

EKIM: I'm holding great thanks, you have to be strong. Sometimes some friends with free time help me out by checking her, but you as well as me know that that isn't going to work in long term. Thank you for your reply.

JENNIFER : Oh, so how's that been working out for u, and which care facility did you take him? 
Like I said: The only place I heard about is Gentle Touch Assisted Living. Thank you for your reply.

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Reply by Nouce
25 Aug 2020, 12:08 PM

Greetings,

 

My husband experienced cognitive decline because of his other disease. I tried for over two years to take care of him at home, but eventually I couldn't manage it. Physically, and emotionally.

 

I know the health-care options are different (better?) in Canada, but after hiring staff at home I realized it was just as costly as finding him a care facility.  Yet I also found out that taking the first option is dangerous. I had to move him from the first facility in less than a month because they did such a horrible job.

 

Thank goodness I eventally found another home.

 

These are terrifying and exhausting questions. You give up a lot when you place your loved on in a facility, but you also offer yourself some space and may be able to care better for thm.

 

My heart goes out to you.

Nouce
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Reply by eKIM
26 Aug 2020, 12:26 AM

Hi KiraBoyd


 In the earlier years as a hospice volunteer I used to gravitate towards the family members who seemed to be the most upset.


 When I read your words below, it got me thinking about how I subtly made a change in my approach to being a compassionate listener.


 “you have to be strong.”  and


 “it's kinda hard to bear them with my problems.”


 What I began to realize was that we were sometimes missing people who really needed us by their side.  Who?


 It often is the “Strong One” who needs the most loving care and kindness.  Why?


 First of all, one of the characteristics of strong people is that they constantly put the needs of others ahead of their own.  They don’t want to make other people more upset.  It’s an act of love from a very loving, loveable person.


 Ironically the situation is made tougher for the strong person, because – in her strength – others think that she is “OK/ handling things well/doesn’t need to talk/etc.”  So the person moves on to someone else who appears to need more help.


 So, now I look for the strong ones, engage them in conversation, draw them out and listen to their story – just in case they need someone to listen, someone to unburden themselves to.


 Un-addressed stress can become overwhelming if there is no opportunity for release.  Talking to a sympathetic person can be an effective release.


 I would suggest, KiraBoyd, that if this is the situation that you find yourself in, that you find someone – locally or even here at virtualhospice that you can listen to your story and offer you support and comfort.


 Sending you thoughts of Peace


 -eKim

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