Hi Tereska,
I’m sorry to hear about your mom’s diagnosis.
Just over 10 years ago, I was pretty much in your shoes feeling the same things you mentioned. My mom had been diagnosed with stage 4 breast cancer that had spread to other parts of her body. I was 30 and she was 62.
I don’t think it’s possible to not be affected when your loved one is so ill and see a disease diminish them over time. Here’s a few things I learned or that helped me cope:
I too thought I’d grow old with my mom. When I realised that was not going to happen, I reframed my vision and decided to make the best out of the time we had left. I took leave from work (using the Compassionate Care benefits offered through government Employment Insurance) to care for her. I figured since she was such a good mom to me and my siblings I would focus my energies into being a great caregiver for her. My mom was very worries about who would care for her. When I told her I would be her main caregiver she was so very relieved.
Well the situation was so awful and I felt like I was dying too. I then realised what I was feeling was probably only 1% of what my mom was feeling. She didn’t want people crying on her because she had her own tidal wave of emotions she was dealing with herself. I became the gate keeper when it came to people wanting to visit her. If friends and family wanted to be overbearing, cry on her our make the situation about how they were feeling, she didn’t want to see them. At her request, it was my job to set boundaries and/or limit their interaction with her.
This being said, if your dad and brother do not know about your mom’s diagnosis and how serious it is, you may want to think about letting them know. The health of someone with stage 4 cancer is precarious, things can change quickly. You could set some boundaries with them and keep reminding them “this is about mom and how mom is feeling, not about us and how we are feeling”
In terms of self-care, I also went to see my doctor to tell her what was going on and how much anxiety and stress I was feeling. She prescribed an anti-depressant and anti-anxiety meds. I’m not a person who likes taking pills or thinks meds are the solution to every one of life’s problem but they did help me cope with the situation better.
We tried to take things one day at a time and not think about the future. We celebrated when she had a good day and bore through the bad ones.
When dealing with a loved one who is so ill and/or is dying it thing it is very important to understand the wishes of your loved one. When someone is so sick they feel like everything is out of control, having their wishes followed is one way to give them back some control. If you go about following these wishes you may also have few regrets later.
Tereska, the journey you are on will not be easy, in fact most of it will be horrible. Channel the love you have for your mom into strength to be there for her when she is going to need you the most.
Thinking of you and hoping you find some comfort in these words,
GWTBB