Hello Beas,
NatR is providing some great support to you and excellent suggestions in navigating this world that you have been thrown into. I am wondering about some practical issues as well, such as if you have access to home care and palliative care services. I am thinking these would be helpful in your caregiving role.
It sounds like you could use some help and hopefully they could provide some assistance for your husband, but also support you as well. There are often social workers available to support you in your caregiving role. We all know it can be difficult to care for someone 24/7..... it's exhausting and even if you can get someone to come out and support you a little bit, it can make a huge difference! If you have a hospice that provides community supports, please see if they have a support group, respite services, nursing visits or volunteer visitors. These are wonderful resources that people often forget about in the midst of caregiving every moment of the day.
Wishing you much strength,
Simone (CVH Moderator)