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CAREGIVING 
Créé par Ena
24 nov. 2019, 6 h 51

i HAVE BEEN MY HUSBANDS ONLY CAREGIVER FOR OVER A YEAR, LIVING IN CORRIDORS, WARDS,DOCTORS OFFICES,WAITING ROOMS,TRAVELLING 3 HOURS TO GET TO THE lONDON HOSPITAL FOR APPTS. i HAVE HAD TO GET INVOLVED WITH TUBE FEEDING, DRESSINGS,WAITING IN ENERGENCY ROOMS FOR 7-8 HOURS MANY TIMES. i HAVE HAD TO TAKE MY HUSBANDS ROLE AT HOME AS WELL AS MY OWN TO RUN THE H OUSEHOLD AND THE LARGE GARDEN.
i HAVE LOST THE MAN i KNEW AS MY HUSBAND AND ALSO MY WAY OF LIFE AS WE TRAVELLED THE WORLD. THIS HAS BEEN A TREMENDOUS BLOW TO ME AND TO US.
AND ALL OF THIS WOULD BE WORTH IT IF WE COULD SEE THAT THERE IS A LIGHT AT THE END OF THE TUNNEL, TO RETURN TO HIM SOME OF THE QUALITY OF LIFE HE KNEW.
 
28 mars 2020, 19 h 50

Dear Ena
I know it's been some time since you posted. Your words tell the story of your life. I wish it were not so. You are nurse, cook, cleaner, secretary, and somewhere in there still his wife and the one who loves him - although that role can get sidelinded by the others. 
Has there been any light or lightening of your load? And all this in the light of Covid 19 which has changed life as we know it. 

Sending warm hugs your way. Please let me know how you are.
Katherine N (discussion forum moderator)
 
Réponse de Cas
21 mai 2020, 21 h 43

Hello, this is my first time on this, :) I am dealing with my mother. She has dimentia andshe also has dillirium caused by a UT Infection. I have been looking after her along with my siblings. I have been helping her to the bathroom, helpin her with her meds, cooking, cleaning,   etc. I find it extrmly hard, very sad and most of the time I am crying, and getting very upset with myself thinking what did she do to DESERVE this sickness. Her Doctor placed her into the Rockyview Hospital here in Calgary,Alberta Canada. I want her to come home, but it just would not be safe for her. Why cant things be like they were years ago ?  I remember she used to do things on her own. So many things. Catch the bus, go shopping, walk to my brother and sisiter's home, without any assistance. THIS ALL CHANGED ! Why ?? I need to know how better to cope with this. I keep asking myself and others why and all they end up saying things will get better !!  I end up crying and just cannot find myself to be TRULY happy again. I am so SAD!! I hope that by talking with others I can learn  to better deal with this.
 
22 mai 2020, 0 h 55

Dear CAS
Welcome! I am glad you found us. 

So many things have changed for your mother and for you and your siblings. You have spent so much time and energy giving your mother the physical care she needed, plus looking after the running of the house with the cooking and cleaning. And giving her the emotional support she needed. Do you find it hard to know what to do with yourself now that she is in hospital and I imagine if your situation is like many in Canada right now you are not able to visit her - see her and hold her hand. 

I am sure you are so sad - life as you knew it is turned upside down. As ENA said above "This has been a tremendous blow." 

Are you and your siblings able to talk about how each of you is feeling? Is there someone in the hospital who could talk with you?

A warm virtual hug,
Katherine
 
Réponse de Cas
22 mai 2020, 1 h 11

Thank you K, a virtual hug to you as well, :) Life hasbeen turned upside down :( I have great siblings and we are all dealing with this differently. My way isCRYING , I just dont know how to STOP CRYING ! My siblings dont cry at all. I wish that I can stop the crying and importantly NOTCRY in front of my MOM :(  It is not good that she sees that crying I do !  Dam....itmakes me so MAD !!  My mom is the best mom also the BEST FRIEND and to see her go through this is TERRIBLE ! I wish that I had magical powers I would take that dimentia away!! O K  whatcan I do ... I wish my church was open I could talk to my priest :( ! Thank you for listening, K  !!
 
Réponse de NatR
22 mai 2020, 1 h 28

Hello CAS 

I just became aware of this thread and wanted to add a hug to the kind notes from Katherine to you 

first of all, take a deep breath - and pat yourself on the back.  You and your siblings are dealing with a difficult time in your moms life

none of it is easy - but if you can try and tell yourself how lucky your mom is to be surrounded by you all, that's what matters ..

its the little  things, it's getting through the morning, the next hour, putting a comforting arm around your mom, or getting a smile

it's amazing that you are there to return the favours your mom did when she cared for you, and protected you.  

nothing makes it right, nothing quite takes away the pain - but you are doing the most important thing ever - in caring for your mom

dont feel alone, write when you can.  I don't always get notifications from the message board but I wanted to try and lift your spirits.  My mom also had dementia and it's so hard.  I understand how you are feeling - and I'm sending you my thoughts and hugs across the miles 

take care of you too!
caregiving is the most amazing gift you can give ❤️
hugs 
NatR 

 
 
Réponse de Cas
22 mai 2020, 3 h 45

Thank you so much NatR ! I do love her very, very much and also my siblings !! What we went through together in life I know that I will love her now and forever !! I am and so are my siblings trying to let her know that, we are forever here for her !! The changes in her these last months were awful. I did not realize how fast it happened ! Why, I ask myself, why !! I just don't understnd !! This happened to my father, and I just cannot believe that I would go through this again, and with the most important person in my life...my mom :( :( Why God , why her !! Well thankyou for listening to me NatR !! Your kind words mean alot !! Many hugs to you as well !!

Cas
 
Réponse de alicefaye
18 déc. 2020, 1 h 16

I'm new to this forum but not new to being a cancer care partner. My Mom passed away last year of pancreatic cancer and before that my Grandmother of breast cancer. Now my best friend is sick and I'm looking after her. Mostly I can't believe I"m doing this again. I didn't have anyone to talk to in the past so I;m looking for support and knowledge from people who understand.

Alice
 
18 déc. 2020, 21 h 51

Welcome Alicefaye,
I am glad you found us. What a tough time it's been for you - it doesn't seem like there has been time to grieve one loss before you experience the next loss. 

This has been such a strange year as well with Covid changing how we an interact and grieve. 

I know you will find people here who understand and who care what is happening around you. I find one of the greatest supports for me is when people listen to my story. To know I have been heard - often there is nothiing someone can do to 'fix' things, but sometimes my being able to talk about it helps me to find ways to manage.

What supports you Alicefaye?

Warm virtual hugs,
Katherine


 
Réponse de NatR
18 déc. 2020, 21 h 58

Hello Alice 

support and understanding  - something that is of incredible value especially when going through caregiving and the possibility of loss - it's so helpful to have a listening ear, a word of encouragement.
welcome

its tragic that we all have these difficult moments- and I hope you find the support you need here
just to know you can vent, that you aren't alone, that's a gold thing.  No communication or support is hard - and here we are, a few souls who care, who listen, who remind you to take care of yourself 

feel better knowing that you can ask, think out loud , and hopefully we can give you the suppprt and understanding you need

sincerely
NatR  


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